The Wrong and Right Things to Say to Somebody Battling Mesothelioma
Page Medically Reviewed and Edited by Anne Courtney, AOCNP, DNP This page has been fact-checked by a Doctor of nursing practice specializing in Oncology and has experience working with mesothelioma patients.
Sources of information are listed at the bottom of the article. We make every attempt to keep our information accurate and up-to-date.
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A diagnosis of mesothelioma presents physical and financial challenges but also emotional struggles. The wrong and right things to say to somebody battling mesothelioma can be difficult to know without experience. These tips from people who have had to cope with mesothelioma can help loved ones provide positive support.
1. I’m here for you.
There’s an old phrase that says that 90% of success lies in just showing up, and that is particularly true when it comes to helping a person who is struggling with mesothelioma or any kind of cancer or serious illness. Being there for somebody can mean a lot of different things. It might be sitting and listening when they want to talk about their fears, and it may be vacuuming their house for them or bringing over a pot of nourishing soup. Little things mean a lot, but the fact that you take the time out of your own schedule to be there for them means more than anything else.
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- File for your share of $30 billion in trust funds
2. Everything happens for a reason.
This meaningless phrase does nothing to help a person who has been diagnosed with a terminal disease, and can sometimes imply that their illness is a result of something they have done wrong earlier in their life. Mesothelioma is a disease that afflicts people after they have been exposed to asbestos, and also is a result of them doing nothing more than working to support themselves and their family. Instead of trying to imply that the cancer or their limited future makes some kind of sense, ask how you can be of help, and listen to what they have to say and what they are feeling.
3. Don’t question their therapy or treatment plan.
Though it may be helpful for you to do some internet research in order to have a better understanding of what the mesothelioma patient is going to be going through, the information that you have gathered does not in any way qualify you to provide a medical opinion. Treatment protocols for mesothelioma vary based upon where the cancer is located in the body, what type of mesothelioma cell is present, and the degree to which the cancer has spread. It is also often a function of private discussions that have taken place between the patient and their physician about exactly how aggressively the patient wants to pursue treatment. Unless you have access to all of this information, it is better to simply provide encouragement for whatever decisions have been made about treatment.
4. I was talking about you the other day to…
One thing that is essential is that you respect a mesothelioma patient’s privacy. Cancer patients often complain that once they are diagnosed they suddenly stop being treated like a person and instead are treated like a disease. Remember to respect their privacy and that there is a person with feelings involved. Unless they have given you specific permission to talk about their condition to a specific person, don’t talk about their treatment or their prognosis.
5. Remember that if they didn’t ask for your opinion, they probably don’t want it.
People who are interested in knowing what you think are very likely to ask, but that doesn’t seem to stop people from offering their opinion. Remember that when you start a conversation with the word “I”, it is about you, not them. The person who has been diagnosed is the person that needs the attention. Try to remember that, even if what you are doing is telling a story about your own experience. Find a way to talk about something that helped you while asking if that would also work for them – and if they say no, then respect their wishes.
6. Come up with a concrete list of things you can do to help.
It can be exhausting for a mesothelioma patient to come up with a list of requests and things that they need done, or that you can do to help; instead, come up with your own list of ideas for things that you can do to help and ask them to say no or yes.
Page Medically Reviewed and Edited by Anne Courtney, AOCNP, DNP
Anne Courtney has a Doctor of Nursing Practice degree and is an Advanced Oncology Certified Nurse Practitioner. She has years of oncology experience working with patients with malignant mesothelioma, as well as other types of cancer. Dr. Courtney currently works at University of Texas LIVESTRONG Cancer Institutes.